Rheumatology and other medical rantings

Tomorrow, I go to see a new rheumatologist at a different medical facility. One thing I should mention, is that I have EDS. No, not erectile dysfunction, but rather Ehlers-Danlos Syndrome. If you don’t know, it is a rare genetic disorder that affects all of your connective tissues. Sounds fun, I know. I don’t know about you, but my whole life I had been told that I was a hypochondriac because I had all kinds of strange issues that did not coincide with the other. I’ve also been referred to as, “An Enigma.” What did I say to this? Nothing, I just throttled him, of course. -Just kidding. So going to a new doctor is exciting and hopeful, with a bit of disappointment albeit prematurely. I want to think of the glass here, as half full and for the most part I am.

In February of 2024 my kidneys became so inflamed that my body started to shut down. I was hospitalized for three days and given Rocephin, a wonderful antibiotic. Though they could not find any infection. They thought I had pyelonephritis, a massive kidney infection. But even the cultures came back with no infection. So, they just kept giving me Rocephin because I was getting better. They even billed it under pyelonephritis because you have to give a diagnosis in order to get paid by insurance because of our wonderful medical insurance (I like to refer to it as ‘The Racket’) in this country. They have no idea why it happened and it hasn’t happened since.

Hopefully, tomorrow I can get some answers, perhaps regarding that episode and all of the other funky things going on today. It might even be that it is the EDS or maybe they will just say, “Oh, I’m sorry Mrs. Mornington. You are not from this planet. We will assist you in getting back to yours.” Until then folks…

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